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Título : Quality of life of latin‑american people with neuromuscular disorders and their families during the covid‑19 pandemic
Autor : Ortega, Javiera 
Vázquez, Natalia 
Amayra Caro, Imanol 
Fecha de publicación : 2023
Editorial : Springer
Cita : Javiera O., Vázquez, N., Amayra Caro, I. Quality of life of latin‑american people with neuromuscular disorders and their families during the covid‑19 pandemic [en línea]. Advances in Neurodevelopmental Disorders. 2023. doi:10.1007/s41252-023-00328-3. Disponible en:
Proyecto: Enfermedades neuromusculares poco frecuentes en edad pediátrica: funcionamiento familiar, adaptación psicológica y apoyo social percibido por los padres como factores asociados a la calidad de vida del niño 
Resumen : Abstract: Objectives The COVID-19 pandemic has afected the entire population, especially the population with chronic diseases. This study aimed to describe the quality of life of children and adults with neuromuscular diseases and their caregivers during the COVID-19 pandemic. Methods A observational correlational study was conducted. Forty-seven participants, including adults with NMD and caregivers of children with NMD, took part in the study. The WHOQOL-BREF and PedsQL 4.0 GCS and FIM scales were used. Results The PedsQL indicated a mean of 55.85 (SD=22.05) for children, and a mean of 55.76 (SD=16.72) for caregivers. Adults reported a mean of 67 (SD=22.5) for their general perception of quality of life, and a M=53 (SD=28.25) for their perception on health. Conclusions The results showed regular to low quality of life of all children, adults, and caregivers, mainly in the physical dimension for people with neuromuscular diseases, and in the concerns dimension for caregivers. These results warn about the physical and psychological vulnerability situation in which this population fnds itself.
Cobertura Espacial: América Latina
ISSN : 2366-7540 (online)
2366-7532 (impreso)
Disciplina: PSICOLOGIA
DOI: 10.1007/s41252-023-00328-3
Derechos: Acceso abierto
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